Join the Rare Diem Conference in seven days, on August 25th, a three-hour virtual conference to learn how to further your connections and expertise for rare disease opportunities by connecting with stakeholders including biopharma, the medical community, advocacy and government, as well as PAG representatives, each specialized in Latin America.
Topics include “The Future of Clinical Trials for Rare Diseases in Emerging Markets” and “Overcoming the Challenges of Market Access for Rare Disease Treatments in Emerging Markets.” Experts will share current information concerning public policy for rare diseases and overcoming political obstacles in studies, plus intricacies of enrollment in Brazil, Columbia, Mexico, and Peru, including resources for working with PAGs, accessing PI’s, and sophisticated sites with KOL connectivity.
Esteemed panelists such as Dr. Mariela Larrandaburu, the President of the Latin American Human Genetics Network will be present along with Dr. Jorge Escobedo, the Head of IMSS’ Clinical Research overseeing 80 million lives, in Mexico, and Mexican Senator Alejandra Reynoso Sanchez of Guanajuato, who is working to create favorable legislation for rare disease patients. Antoine Daher, Founder and President of Casa Hunter in Brazil, who is accustomed to working in government policy to assist rare disease patients will also share his experience.
Camille Nebeker, Director of Research Ethics, UC San Diego, will provide insights on access and protocol for the rare disease patient. Dick Salvatierra, Founder and President of Americas Health Foundation will discuss building bridges between industry and governments, creating a multi-stakeholder collaboration for the future of healthcare in Latin America, along with his associate, Dr. Mariana Ricco, Regional Medical Director Latin America at Americas Health Foundation based in Bogota Colombia. Also hear Harsha Rajasimha, Founder and CEO of Jeeva Informatics Solutions an eClinical cloud platform, among others providing experience and insight.
Today, there are over 7,000 rare diseases worldwide that need to be addressed. Be part of this important future. Sign in now, for this three-hour virtual conference, at no cost, to understand how the topic of Rare Disease and pathways to treatment can open opportunity conduits for your company or career, as we present the upcoming virtual conference with our coordinating partner, UC San Diego.
REGISTER FOR THE RARE DIEM CONFERENCE HERE
For more information on Rare Diem and how to register,contact Sara Tylosky, CEO Farmacon Global or Carlos Martínez Villela 561-232-3441
