We are proud to have Dr. Mariela Larrandaburu, the President of the Latin American Human Genetics Network, RELAGH and advisor to the Ministry of Public Health in Uruguay, discussing overcoming the challenges of market access for rare disease treatments. Also, present will be Senator Alejandra Reynoso Sanchez of Guanajuato, Mexico, who is working to create favorable legislation for rare disease patients. Dr. Jorge Escobedo, head of the clinical research for Mexico’s Instituto Mexicano del Seguro Social, overseeing care for 80 million enrolled, has much to share on the topic. Not to mention, Antoine Daher, Founder and President of Casa Hunter in Brazil, who is accustomed to working in government policy to assist rare disease patients, will lend insight.
There are over 7,000 rare diseases worldwide that need to be addressed. In all, the Rare Diem Conference will bring together experts in the pharmaceutical industry, the medical community, academia, advocacy leaders and government representatives to analyze advances in research and access to treatments in Latin America for rare disease patients and those who assist them. Every Rare Diem Conference presenter plays a unique part in rare disease solutions in this evolving market.
Our conference name, ‘Rare Diem’, playing off the ‘Carpe Diem’ expression, reminds us all to seize this moment in finding pathways to unravel the complexities in evolving markets and embrace solutions for Rare Disease patients which benefit us all. Sign in now, for this three-hour virtual conference, at no cost, to understand how the topic of Rare Disease and pathways to treatment can open opportunity conduits for your company or career, as we present the upcoming virtual conference with our coordinating partner, UC San Diego.
REGISTER FOR THE RARE DIEM CONFERENCE HERE
Sara Tylosky, CEO Farmacon Global or
Carlos Martínez Villela 561-232-3441
