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Rare Diem UCSD


The University of California is respected as one of the top fifteen research universities worldwide, while the UC San Diego Division of Extended Studies provides opportunities for continuing education for professionals, including in clinical trials and research to accelerate drug development. As our organizing partner of the Rare Diem (Virtual) Conference on August 25th, this esteemed university will provide the perspective of academia in the overall discussion, which is key to results. We especially acknowledge Debra Ortuño and Dona Stern, Managers of the Healthcare Education Department at UCSD Division of Extended Studies for their leadership in helping to make the Rare Diem (Virtual) Conference possible this year.
There are over 7,000 rare diseases worldwide that need to be addressed.  It is a given that educational institutions such as UCSD also support and facilitate important discussions at a political level.  This is critical as the availability of treatment for rare disease is also a matter of public resources. UCSD Extension not only knows how important it is to discuss rare disease in general, but they are actively engaging in the conversation, with the intention of improving the content of programs and promoting inclusion in clinical research.

In all, the Rare Diem Conference will bring together experts in the pharmaceutical industry, the medical community, academia, patients with rare medical conditions, advocacy leaders, and government representatives to analyze advances in research and access to treatments in these evolving markets with the help of UC San Diego. Every Rare Diem Conference presenter plays a unique part in rare disease solutions in Latin America. Panelists include Dr. Jorge Escobedo, Head of Clinical Research, IMSS, Mexico, and Dr. Camille Nebeker, Director of Research Ethics at UCSD – among many others.  Join the conversation.

REGISTER FOR THE RARE DIEM CONFERENCE HERE

For more information on Rare Diem and how to register,contact Sara Tylosky, CEO Farmacon Global or Carlos Martínez Villela  561-232-3441

Sara Tylosky, MBA
CEO

Sara Tylosky, MBA, CEO at Farmacon Global, brings over 20 years of experience leading teams in both large and small pharmaceutical and biotech environments. She has led Farmacon Global, a strategic CRO of medical consultants, in accelerating clinical trials, increasing diversity, supporting enrollment, and paving the way to market access in emerging markets.

Known for her high cultural intelligence and problem-solving skills, Sara and her team specialize in Rare Diseases, Immunology, Infectious Diseases, Cancer, and Vaccines. Fluent in Spanish and having lived on four continents, she has a special focus on Latin America while actively expanding into other key markets globally. Sara’s direction plays a pivotal role in steering Farmacon Global toward healthcare innovation and global market leadership.